Why should I participate in the CMDIR?

Why should I participate in the CMDIR?


    Simply put, we will not be successful in finding treatments unless we know who the affected individuals are, what their diagnosis is, and how the disease is affecting the individual. In rare disease, every person must be counted!

    By registering, you will receive information about:

    • Genetic testing opportunities
    • Interpreting your genetic report
    • Webinars and other educational resources
    • Available clinical trials for which you may be eligible
    • Available therapies for your CMD subtype when they become available
    • The CMD | LGMD | CM | CMS Online Support Community
    • Conferences & Events
    • Scientific Publications
    FAQ Ordered Group: 
    Your Data Has Power