The CMDIR is funded by several advocacy and research partners. You may opt into sharing your informaton with some of these organizations during the course of registration. Otherwise, only de-identified, aggregate data will be shared.
CMDIR Funding Partners
- Cure CMD (registry administrator)
- A Foundation Building Strength for Nemaline Myopathy
- Team Titin
- Noelia Foundation
- Santhera Pharmaceuticals
- Prothelia Therapeutics