What kinds of questions might the CMDIR help answer?
There are many questions that may be answered through the CMDIR. For example:
- What are the primary symptoms and adverse events for my subtype?
- Which symptoms have the greatest impact on day-to-day living?
- What are affected individuals finding to be the most impactful activities to reduce symptoms?
- Is it possible to predict someone's prognosis based on genetic mutation and the experience of others with the same or similar mutations?
- Where is the greatest need for additional research in order to identify treatments?
- Is (my) VOUS mutation actually disease-causing?
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