How much data do I need to share, and how much is enough?

The more information you can contribute about your neuromuscular disorder, the better!

Also, the CMDIR will continue to evolve as research advances. Additional surveys may be added and existing ones may change based on future need. Some will be shorter because only a few answers are needed; others will be more comprehensive, as needed, for research.

Your continued commitment to providing information is essential. And we have a commitment to you: To keeping you up to date on how the CMDIR is contributing to research, and to providing you with resources to ensure that you are fully informed about best care practices and clinical trials happening in your subtype.