Title:
What kinds of information will I be asked to contribute?
You will be asked to contribute information about diagnostics, family history, symptoms, disease progression, and current treatments being utilized. You may also be asked to provide medical records pertaining to the diagnosis and care of your neuromuscular disorder.
The most important report for us to receive is your genetic testing report that outlines which gene(s) and mutation(s) are involved in your diagnosis.
FAQ Ordered Group:
Data Collection